My name is Bekah. I am a wife to a track coach, a grieving mommy, and a pursuer of the hard and vulnerable to find truth, joy and love! My son Titus went to be with Jesus on September 17, 2016 at the age of 6 because of a rare and fatal disease, Batten, or CLN2. My youngest, Ely, fights this same disease and is currently in experimental treatment hoping we can put a stop to his progression. We believe that our story is a small part of the BIG God story. That is the framework in which I try to live my life… with a perspective that each day I get to be a part of the greatest story ever told. And you are a part of that story too and I’m thankful our paths have crossed here. Below are more ways to connect with us!
To learn more about our story: click here. This video was taken when Titus was still with us in the fall of 2015.
If you want to get to know Titus, who I’m sure is running through streams and riding on the backs of lions, here’s a music video put together by my husband, song written and performed by our dear friend Jeromy Deibler of FFH: Goodbye for Now.
Connect and follow us on facebook as we update you on Ely and our journey through grief and joy!